We should all have opted out of the NHS spine.
Drug and insurance companies will from later this year be able to buy information on patients including mental health conditions and diseases such as cancer, as well as smoking and drinking habits, once a single English database of medical data has been created.
Harvested from GP and hospital records, medical data covering the entire population will be uploaded to the repository controlled by a new arms-length NHS information centre, starting in March. Never before has the entire medical history of the nation been digitalised and stored in one place.
We did. Did you? These vile creatures will treat your information as if it belonged to them – and if you didn’t opt out, that’s precisely what it has become; theirs to flog to whoever they choose. You didn’t really believe that it would all be protected and confidential, did you? Really?
Update: According to Pavlov’s Cat in the comments, it looks as if I will have to opt out all over again as this is not tied into the summary care records.
Note: care.data (or GPES G.P Extraction Service) is completely separate from the SCR (Summary Care Record) which is held on the Spine.( or PDS Patient Demographic Service)
Previously opting out of the SCR DOES NOT opt you out of the care.data extraction which is purely a data mining exercise
If you do not want your data to go out of the surgery you need to ensure the ‘Read’ code 9Nu0 ‘ Dissent from secondary use of GP patient identifiable data’ is added to your electronic record
I am in favour of the SCR and if it was working a year or so back , I would not have had to leave an 85 year old woman in A&E with broken hip whilst I went to her house to find out what medication she was on before they could give her pain killers. If I was unconscious and had a severe allergy I would hope some one could look that up .
But this extraction has no relevance to a persons care and is bound to be corrupted as was DVLA data , electoral rolls etc.
They can. I wear an SOS Talisman. No need for intrusive databases. Instant access to relevant information right there on my neck.
Is it possible to opt-out at this late date?
I can’t remember if I did or not – though I certainly meant to.
Oops
Greg
Check this out http://www.care-data.info/ It is still possible to opt-out, and tell everyone you know.
You can still opt out. Go to the NHS website and download the relevant form. However, if they have created a record, they won’t delete it, they will merely lock it so that it cannot be accessed.